Monday, May 6, 2013

Ho Hum

It's been pretty quiet around here lately.  Nothing really new to report.  Rapunzel has been seeing her allergist regularly, and we're still awaiting our appointment with the Immunologist at Texas Children's in a couple weeks.  She's still having flares regularly, but we're able to keep them better under control now.  So she's still flaring, but it's not getting to the point of infection, so that's a good thing.

She's been dairy-free for 6 weeks and we've not really seen any improvement in her skin from it.  Well give it another couple weeks.

I think the biggest things that have helped her skin recently are: adding the humidifier to her room, being super-vigilant about twice daily soaks and moisturizing, upping the bleach baths to three times a week, keeping her hands wrapped at night (so that she can't scratch), and adding in the magnesium supplement which has been helping her sleep better.

So we'll keep doing what we're doing.  We have a long list of questions for the Immunologist.  Hopefully we can get some of them answered and see if there's anything more we can do for our girl.

 Being silly before bath (and yes I know I need to clean my mirror)

If you'd like to help support Rapunzel, we'd love if you'd order a t-shirt!  We're selling them to raise money for the National Eczema Association's Itching For a Cure Eczema Walk.  Just use this link to sign-up for the sizes you'd like and you can pay me directly (I will be placing a big order for all the t-shirts after May 18) through PayPal.  Email me at for more info!

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